Muscular Dystrophy News ForumsDoctors That Provide Irrelevant Advice – Muscular Dystrophy News Forums /forums/forums/topic/doctors-that-provide-irrelevant-advice/feed/ Mon, 13 Jul 2026 02:25:30 -0500 http://bbpress.org/?v=2.5.14-6684 en-US /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16436 <![CDATA[Doctors That Provide Irrelevant Advice]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16436 Wed, 02 Dec 2020 01:00:57 +0000 Leah Leilani Have you ever been told that your symptoms or medical conditions caused by MD are due to stress?

I went to see a a Gastroenterologist for theĚý first time yesterday. I’m always wary of seeing new doctors because I know there’s a strong possibility they won’t understand my condition. Although the doctor gave me some good advice, he also told me that my gastric issues are stress induced and could be prevented Ěýif I exercised and meditated more.

Would you choose a different doctor in my situation?

]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16447 <![CDATA[Reply To: Doctors That Provide Irrelevant Advice]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16447 Fri, 04 Dec 2020 20:40:04 +0000 John Woods like being confined to a wheelchair and being told by your PCP to “get more exercise”

]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16482 <![CDATA[Reply To: Doctors That Provide Irrelevant Advice]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16482 Fri, 18 Dec 2020 22:05:03 +0000 Leah Leilani I recently had a doctor tell me that too. I mean, I appreciate that they think I’m not “wheelchair bound” but exercise is a big leap (no pun intended).

]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16529 <![CDATA[Reply To: Doctors That Provide Irrelevant Advice]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16529 Fri, 08 Jan 2021 22:57:49 +0000 Karl Evans Yeah, that is pretty ordinary, I guess. I have Fukutin, as well as a bunch of other genetic stuff. I have to go to a health system which has very few doctors with any experience. When I see a 16 year old eighth grade grad posing as a MD, I shiver inside. After all, when there are only a few of us in the world, it is pretty unlikely he or she will ever meet another patient with Fukutin and Gelsolin and leukemia and anemia and hypoparathyroidism and all this other stuff.Ěý So I try to do everything I can to not rely too much on the docs. I trust OMIM and HPO and the rest of NIH.

]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16542 <![CDATA[Reply To: Doctors That Provide Irrelevant Advice]]> /forums/forums/topic/doctors-that-provide-irrelevant-advice/#post-16542 Tue, 12 Jan 2021 21:41:49 +0000 Leah Leilani Karl, good doctors are definitely not easy to come by. Sometimes all you can do is trust your own instincts and how your body feels. After all, you know your body best.

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